Thursday, April 20, 2017

Stroke and PseudoBulbar Affect (PBA) by Perry


I had a stroke 11+ years ago and have PBA. It makes my mood happy, even when it shouldn’t. TV news shows dead people; I am sorry, but I still smile. 


Watch TV, PBA commercial (https://www.pbainfo.org/) is good, some 3-4+ years have stroke. It was creating mood. The PBA commercial is stroke and brain injury. You are happy when TV has a bad story, and you cry when it is a great time.

For instance: Ex-wife before divorce, and I told her that I have PBA. The ex-wife’s mother died, and I was in a happy mood. I could smile, stand up for receiving line at funeral.

The practicing doctor is clueless. I can’t speech. I don’t see my neurosurgeon anymore. The Stroke Comeback Center was not telling, and realized my mood was happy and cry. Physical Therapy didn’t realize my mood. My family, parents and sisters, were normal. I am normal mood (I can’t speech). The 4+ years was heavy PBA, and no drugs for PBA (23 results -
https://www.pbainfo.org/pba-quiz). I am minor PBA today (9 results).

Kids were young: The actions is I might be, and I can change the mood quickly. My kids are rock strong, and I can thank you. Kids/Young adults (college freshman): THANK YOU!! Thank you!! I love you!! Thank you! 

Tuesday, April 18, 2017

Flying Down by Pat

So this made flying very good, then bad. On St. Patrick Day, Patty, my nephew Austin, and I flew to Sarasota, FL. I had called the TSA two weeks before and gave them my information. I told them my VetDog (WILSON) was coming. Two weeks later we went to Ronald Reagan Washington National Airport. We flew on American Airlines. Patty and I sat at the bulkhead. We sat there because Wilson is a big dog. He weighs 100 pounds. They let Austin sit in the first-class. It was easy and relaxing.
 
It was nice in Florida. We stayed at my mom's house and my sister, Mary, showed up. And the weather was beautiful everyday. It was about 75 degrees outside. After five days we went home. It was time to go back to reality.
 
We used Delta Airlines to go home. We were going to Atlanta then Reagan. I realized the airport was not huge in Sarasota. I thought there were nice people from Delta. So I did not call the TSA. First we asked about Wilson when we checked in. They told us to ask the gate agent. They said they would try to fix it. Then they started boarding. So I started getting mad and went over to ask here. "What's going on?" "Can I sit in the bulkhead?" They told me they were still trying to figure it out. They told me Wilson and I were in the 30th row. We went back there and Wilson couldn't lie down. He and I walked next to the back bathroom and waited. A flight attendant asked if I knew to go. "I told him that my VetDog and I can't fit in our row. I told them that I needed to be in the bulkhead. What to do now?" At the end, they did. Well, Delta is strange! The back the rows are tiny.
 
We waited for about 15 minutes. Then Wilson and I got a row at the bulkhead. While I was walking up, tons of people were Tweeting on Delta. "Do your job in the beginning!!!" 10 minutes later we flew to Atlanta. I was still mad! (The Irish come out of me sometimes...) I got my ginger ale and started to relax. There was a doctor sitting next to me. He liked Wilson and he helped people's brains. When the plane landed I got out of the way.
 
I got out and was figuring out where to go. Somebody was waiting to give me a ride to the next airplane. It became nice again. I hope that airplanes can be nice all the time. Now I know I need to call the TSA two weeks before I am going somewhere!

Tuesday, April 4, 2017

Music by Denise

I have two musical instruments that I play, the flute and the piano. The flute was my first study. I practiced the flute for at least four hours per day. There was little that I could not accomplish. I was a well accomplished flutist by the time I was ready to retire. It was a perfect time for playing the flute. I played the music for a long time. When it ended I was already a person in need of a new instrument. I bought a perfect piece, a beautiful piano. The piece was involved in all parts of the study. I cannot give a complete account of efforts during the years studied. But I will say that I was with a growing use of my hands.

Today I am struggling with notes, using only the notes that are played from one hand. My right hand is completely paralyzed. And I have only one hand to use. Work is slow.  You want to meet all of the notes on each line.  There is one more difficulty, and that is with the use of the language or words.

I will work with the one hand available to me.  This will bring all the notes from one hand. I have a friend who was a teacher and will bring me some things to practice. I am at the very beginning of learning, and it will take a long time to learn. I intend to be very happy with this work.