Wednesday, August 7, 2019

Are You a Survivor or a Striver? by Nicole

Are You a Survivor or a Striver?

In my post-stroke stage, I have asked myself, are you a survivor or a striver? It occurred to me, why can’t I be both.


In The Beginning… Being a Survivor

In the beginning of my rehabilitation, I began everyday with brain fog. I politely refer to brain fog as cloudiness that scatters a little at a time. This feeling is something I did not experience before my stroke. It has to be one of those post-stroke symptoms that as my brain heals it will slowly resolve on its own. Even after fifteen months of post-stroke the cloudiness returns once or twice a week. I am learning to accept this cloudiness like the scattered clouds in the sky. Whatever the day offers, I accept the cloudiness like I accept the cumulus (cu-mu-lus), stratus (stru-tus) or cirrus (cear-rus) clouds on some days. Then there are days I do not feel the cloudiness but sunshine all day long.

As a stroke survivor, to get through the day, I have learned to treat my body and mind differently. For example, if I go out one day of the week to the Stroke Comeback Center or go groceries shopping, I must rest the following day. I find that when I am obedient and relax the following day, I can avoid anxiety attacks. After getting a day of rest, the relaxation builds up my mental and physical stamina so I can go on an outing the following day. It is my hope as my stroke ages, one day of outing can turn into two days in a row of outings, rest a day, go out three days in a row of outings, and rest a day, etc.

A neurologist will tell you each person’s stroke is different and that we have different occurrences from our stroke. I am not sure what other stroke survivors feel, but I welcome you to give me a high-five if you have felt or feel similar post-stroke events. It’s okay for me to share an experience or feeling that I did not have before my stroke. The Stroke Comeback Center has welcomed me to gently and patiently share my feelings without shame, disapproval, or dishonor.

As the Stroke Comeback allows me to come to the Center each week to lay down my post-stroke burdens, I have learned to accept they are softly encouraging me to articulate what I are feeling, and share the great ups and downs of my last week.

The Middle….Being a Striver

Thinking back over the last year I find I am also a striver, constantly seeking the beginning of the day and what that new day will bring. I try to dare not journey into the next day, leave the next day to come with a different adventure.

Prior to my stroke, the majority of my day was high strung. I was very anxious about laying out today’s life plans, along with the next day and the next day’s plans.

My stroke is teaching me how to take one day at a time. Whatever I did not accomplish on the current day put it to bed. You know as they say, we worry about over ninety percent of things we later find out the worry was not necessary. Have faith to know your Higher Power will take care of the issue or allow it to resolve itself.

During my Stroke Comeback writings, I sometimes feel embarrassed when I cannot remember how to spell a word or think of the word that so easily spilled out into my pre-stroke vocabulary. I regroup and think about anything I consider bad that happened in my life, if I look deep enough, I can take that bad thing that happened and find something spectacular to share with the world. In my case, my stroke has lifted a veil that was over me. While I was previously hesitant about writing the things I was thinking; of course, as long as the writings were not harmful to others, now I can write whatever I was quietly thinking, free from the “ties that bind me”. This is part of my healing process.

The Ending… Being a Survivor and Striver

Now there are days I do not want to get out of the bed and I want to crawl into a fetal position on that day. But the happy post-stroke part of me graciously says, okay Nicole “rise up and shine”. Stop feeling sorry for yourself. Lay back and take a mental health day, read a book. Look at the leaves dancing on the trees. Listen to the birds singing their beautiful songs just for you.

After all of the years I have tumbled through life, my post-stroke stage sometimes gives me peace beyond all measures, “peace in the mist of the storms”.

The End

Striver – seeker, quester, finder, purser

Thursday, June 6, 2019

Huh, Now Ain’t That Good News by Nicole

 
Early most morning, a little bird comes to my window and sings to me a beautiful song.

Huh, Now Ain’t That Good News.
Each day I hold on to life very tightly and give thanks to grace for another day.

Huh, Now Ain’t That Good News.
I think back when I was on the floor for two days, before getting medical attention for my stroke. Now some days I walk around my home without pain in my body and sing a song, “This is the Day That the Lord has Made, I will Rejoice and be glad in it.” 
Huh, Now Ain’t That Good News.
A day do not past when my eyes will not stumble across the exact location on the side of my bed where I laid, in and out of consciousness, and I play back how I prayed that I would be lifted up off the floor.  During the two days, after several attempts, my spirit told me, “this is the day you will get up off the floor”; and so I did.
Huh, Now Ain’t That Good News.
In my younger years, I was looked at as the “wild one”. My youngest son even referred to me as a ‘hippie’. Don’t know why. 
My mother would tell me, “Girl, you are going to die with your boots on”.  As a little girl, of course I didn’t understand what that meant. After years of wisdom, I finally got it. I was born with a fiery spirit and instead of going out like a bull in a china shop, I must take that fiery spirit and do good things with it.
Huh, Now Ain’t That Good News.
During my most recent break from the Stroke Comeback sessions, It was my plan to read ‘Stacey Abrams’ book, Minority Leader, How to Lead from the Outside and Make Real Change. 
Well as I began to read, I realized it was the new normal me reading her book, not the old normal me. Since my stroke, my eyes become weary after just a little reading. I become frustrated and put the book down. 
So I decided to pace myself. I would do a little reading, put the book down when my eyes became weary; later go back and enjoy the reading a little more; excited because I could not wait to turn the next page of Stacey’s book.
Huh, Now Ain’t That Good News.
When I become so exhausted, my words double up, and I began to speak what I refer to as “gibberish”, I tell my family, I got to go. I am going into diminishing returns. I rest by taking a nap, regroup and go along with the day or night.
And Huh, Now Ain’t That Good News.

When my spirit becomes so sad because the “old normal me” is pretty much gone, at least it feels like it, and the “new normal me” rises up each morning with a, “good morning Nicole, not let’s see what we can accomplish today”. I give in and say, well it’s possible the “new normal me” is here to stay, I must ride her wings for the day until she tells me it time take a break, and rest now.
 
And Huh,    Now     Ain’t    That    Good     News.

To Be Continued-----
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
This was fun! However, when I began to write some of my Stroke Comeback presentations, in the beginning, sadness comes over me. Because I am a verbal person, I am reliving what I am writing. Then I find contentment because everything I am thinking, I am able to put it in writing. It’s like taking the shackles off of my writing. In a way, it’s like giving therapy to myself.
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Wednesday, January 16, 2019

Driving by Tanya

How do you feel normal after a stroke. You don’t feel normal after a stroke. But, I feel normal When driving. After my stroke i Was not driving. Because my doctor told me not to.

Three months after my stroke I was ready to drive. My Occupational therapist said there is a driver’s program. I am lucky. Stroke survivors may take years to drive again or may never drive again.

I had a problem with right and left before my stroke. After my stroke i could not distinguish between right and left. I remember my RIGHT hand that is a tool. I got my license corrected. This means that I cannot use GPS.

I am driving and I feel normal.

Wednesday, January 17, 2018

Uber by Christie

I am grateful for my new cab service called Uber. It gives me the freedom and independence I have definitely needed after being stuck with only two options, Metro Access and Taxi Access which have their drawbacks.  Metro Access has a 30 minute window for when they should show up.  Sometimes, it takes me 2 hours to get somewhere which is annoying as all gettup.  Taxi Access only has 8 coupons in a year and the fare is $33 because of the price I only use it if I am in a bind.  Now, I can Uber to get coffee or go to the grocery store and Uber home and the fare is cheaper than you think.  Also, you can UberPool with other passengers and the fare is cheaper as well. 
 
Thank you Uber for providing the service you offer.  I definitely love it!!!

Thursday, December 14, 2017

Thanksgiving by Randy


This year was very nice for my wife and I. We only had 6 people for dinner this year but it was quite special.  Lots of food and wonderful drinks. The turkey was made in an electric fryer. It was a 13 pounder and was cooked in one hour. It was beautiful and very tasty.


Laura also put together a lot of mashed potatoes, brussel sprouts, gravy, ham, cranberry sauce and much more. Of course we also had desserts and ice cream. We had a prayer which gave us much happiness and love.

After dinner, both Jim and Randy were so stuffed we needed a short nap. You have to love that! After a 15 minute nap we were ready for game night. We played a game called things. As always there was football.

Hoping all of you had a very blessed Thanksgiving as there is always hope and something to be thankful for.

http://randykernus.com






We never give up!!!!!

Thursday, December 7, 2017

Perry's Road Trip, Part 2

Perry rented an RV and hit the road with his dog. Click here to see Part 1 of his road trip.

9/18 – Chicago

I am at Chicago's Wrigley Field – small field!! I drive to University of Chicago's football field. Home of first atom chain reaction – that is not on the signs. I went to Al's Italian Beef for lunch and Girls & The Goat Restaurant for dinner. I dined …... !!!




I like the city, campgrounds are far, near state Wisconsin. I am well done camp site. 

Home? I like each home. It is home and neighborhood!!

9/19 – St Louis

I went and police following behind me. A police car is a road circle to drive me (not with lights). A police is exit highway, take see police and a police car. The same police followed me a long time. I stop in St Louis Arkansas, and not fellow is police.

I drive 5 hours!! I look at the West Arch. I do not walk and elevator closed. 




Home? I do not see city or neighborhood? 

9/20 – Memphis 

I am at Sun Studio- awesome!! A artists can record at Sun Studios. I see Beale Street famous, and Blues Club and Cafe, and BBQ pork. I see play stage the Elvis Presley, Kings Blue, and etc. 


I am trip second at the Gibson guitar and Elvis Graceland home. I was repeat, and I am RV drive!! (repeat) I will Memphis TE road trip #2. 


Home – I was home, and neighborhood and home!! I liked the city, is a great city!! 

9/21 – Asheville, NC
I don't stop in Nashville, Tenn. I will go to Nashville TE road trip #2. 

I go to Biltmore Estate, and wow and 250-room, 35 bedrooms, 43 bathrooms, and 65 fireplaces home built approximately 87,000 acres. I take photos too!! 



Home – It was city, and quiet and nice and food is home!!

9/22 – Columbia, SC 

The University of South Carolina is where my daughter goes to school. The daughter and I drive to Price Costco!! The daughter wants food!! (I was not Costco graduate. I eat noodles!!) 

Home – Discrimination!! I am not home! 

9/23 – Charlotte, NC

I went to NASCAR Hall of Fame. The museum and Hall of Fame were great!!

Home – not home. A discrimination city, and not home. 

9/24 – Harrisonville, VA 

I go to JMU to see my other twin daughter. We went with the dog to lunch. Nice campus. Beautiful. 

9/25 – Ashburn, VA
I drive RV, only great and fun!!! I am home!!

Thursday, November 30, 2017

Exercise with Recovery by Randy

Lets talk about it. Not only is this a great idea for survivors but it is also great for everyone.  Are you a sports fan?  If so, we can look at football, baseball, basketball, golf, bowling and ping pong are examples of  opportunities for exercising your body and your brain. We are always working on our BRAINS and BODIES. Exercise your BRAIN and your Body.
 
Limited mobility doesn’t mean you can’t workout. Help the refs to make good calls, that is a brain workout. Its about movement, whether its our brain or our body.  There are so many possibilities, use the wave, what is the wave? It is what you see in the stands at a game or watching it on TV. You stand up and raise your hands in one motion. 
 
There are easy classes that anyone can do. We, as well as anyone can exercise by using a chair, a wall or a door. We do squats, push-ups, biceps and triceps. Our classes are used by survivors that do and do not have any paralysis on their left or right arm or leg. It is amazing to watch how hard they work with their recovery.
 
Even though our recovery is hard, it is doable. Some men and women that are survivors do not realize what they have accomplished with their recovery. It is the caretakers, husbands, wives, brothers, sisters, dads and moms that tell us and show us about our recoveries. This is why exercise is so very helpful and important. Watch what we do:
 
 
 
Stay in touch.